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For many X-linked CGD carriers, the CGD journey often begins with the diagnosis of a child or sibling. You learn about symptoms and treatment through the lens of a loved one. What about your health, your symptoms? It's time to shift the focus.
X-linked CGD carriers can experience a wide range of symptoms and face risk of serious* infection, which can be assessed with testing to determine appropriate management.
According to one study,
23%
An X-linked CGD carrier’s symptoms can often differ from classic CGD symptoms—they’re not always easy to identify and can change over time. Recognizing your risk is the first step toward protecting your health. Your symptoms are real, and management is possible.
Find CGD care near you.Being a carrier can take an emotional toll. Worrying about your family and how to support them can bring feelings of sadness, anxiety, and helplessness. That’s why making time for self-care is so important—for your own well-being and so you can be there for the people you love.
You are not alone. Connecting with other mothers through organizations like the CGD Association of America can help.
*An infection is serious if you have to go to the hospital and/or get intravenous (IV) antibiotics.
